Most of us who are parenting children with special needs, had some sort of advance warning that our children would have a disorder or diagnosis that would require extra attention and care. Our guest on today’s episode had none. In fact, she was planning for the complete opposite.
Imagine being pregnant for 9 months, expecting to deliver a normal, healthy child, and suddenly, in the delivery room discovering that your brand new baby had a rare skin disorder that could pose a threat to her life. How would you feel? What would you think in that moment? Would you feel lost…broken…maybe hopeless? You would no doubt feel dismayed. Courtney Westlake and her husband, Evan, had no idea their new baby girl, Brenna, had a rare skin disorder until the moment she entered the world. But in the years since, they’ve discovered a different beautiful. I’m excited to share their story with you in today’s episode…
*Editor’s Note- This is a guest post from our good friend Courtney Westlake. She is the author of the newly released book A Different Beautiful
. She lives in Illinois with her husband Evan and two children, Connor and Brenna. After Brenna was born with a severe skin disorder, Courtney began chronicling family life and experiences raising a child with physical differences and special needs on her blog
. You can follow her on Facebook
Sometimes the life we dreamed of having when we first started out on the parenting journey doesn’t turn out the way we envisioned it. In the midst of this, there’s an opportunity to discover a different beautiful.
When my husband, Evan, and I found out we were expecting a little girl, joining her big brother Connor in our family, we had a vision of pigtails. We pictured a little girl chasing her brother around the house, with blond pigtails bouncing on the sides of her head.